'Stepping Towards Equity,' an awareness walk led by Dr. Arun S. with the support of MIND Trust, for people living with Muscular Dystrophy, starts on September 4th from Kasaragod to Thiruvananthapuram.
#Bharathmdfound1
#PPMDIndia
#MuscularDystrophy
Anand Shah, Trustee of PPMD India, an IndoUSrare Patient Alliance Member speaks about his experience with us. #raredisease #indousrare #ppmdindia #MemberReview #testimonial #RareDiseases
IndoUSrare Reena Kartha Nara Govindarajan Global Genes RARE-X NORD EveryLife Foundation Patient Worthy RDI Cure VCP Disease Neuromuscular Disease Foundation Fsma.India LSDSS ๐ฎ๐ณ @lsdssorg IPSPI India @ppmdindia Snyder-Robinson Foundation Remember The Girls Neuromuscular Disease Foundation Radhika Dhamija, MD, FACMG ๐งฌ๐ง ๐ถ International Rett Syndrome Foundation @Wishes4Elliott
'PPMD India is working to implement the latest Standards of Care. We also fund clinical studies, as we believe that the solution to finding viable treatment is research.โ โ Anand Shah, PPMD India Trustee.
๐ Welcome PPMD India!
#Duchenne #PPMDIndia
worldduchenne.org/news/ppmd-indiโฆ
Exciting annual event for the rare disease community! Registration open!
globalgenes.org/global-genes-lโฆ
Encourage all member organizations to register! Global Genes IPSPI India International Rett Syndrome Foundation Cure VCP Disease LSDSS ๐ฎ๐ณ #ppmdindia Snyder-Robinson Foundation @sfcomms EDS awareness page Defeat MSA Alliance CSNK2A1 Foundation