We are happy to share the latest Community Letter issued by Roche. You can see more here: sma-europe.eu/news/community…

All together. One goal.
#spinalmuscularatrophy #raredisease #treatment #risdiplam

We r honoured 2 have Mr Vijay Garud, Managing Director, Syniti, n
Mr Srikanth, Director, HR, Syniti join us in commemorating #RareDiseaseDay n supporting #SMArtWarriors
Tku @syniti 4 yr generous donation of medical equipment and motorised wheelchairs 2 SMA patients🙏.

Today, on #RareDiseaseDay , CureSMA India stands with all those affected by rare diseases like #SMA . Together, let's raise awareness, promote research, and support one another in our journey towards a cure. Every voice matters in the fight against rare diseases! #BattleAgainstSMA

Heartfelt gratitude to Kerala Chief minister Pinarayi Vijayan , Dept. of Health & FW, Govt. of Kerala Veena George for officially announcing the scheme KARE: Kerala united Against RarE diseases. Kerala Government | കേരള സർക്കാർ 's free drug program for SMA and free scoliosis surgeries have saved many lives. Thank you🙏

We’re excited to announce the addition of Katie Peng to our Board of Directors.

Katie brings deep commercial expertise in neurology and rare diseases, including SMA from her experience launching Evrysdi while at Genentech.

Learn more: bit.ly/3SJf9WO

🧬 #FebRAREuary spotlights a #RareMother ✨

#SpinalMuscularAtrophy is a rare disease found in an estimated 1 in every 6k-10k people. It is a progressive genetic disorder that affects the motor nerve cells in the spinal cord...

Read more at gne-myopathy.org/feb-rare-uary-…

#Motherhood

We are proud to see 12-month data from our Phase 2 TOPAZ study in a leading publication. These data led to the design of our Phase 3 SAPPHIRE trial, which completed enrollment last September.

Read more: bit.ly/3wh4OKf

Congratulations #SMA rtwarrior Dr. Archana Vijayan! Overcoming obstacles, she triumphantly earned her MBBS, passionately pursuing her dream. She aspires to contribute to comfort the patients facing #SMA ! #Inspiration #BattleAgainstSMA

manoramaonline.com/style/she/2024…

Sailesh Kolanu with Venkatesh Daggubati brought out the suffering of #SMA childn #India Hope Telangana CMO PMO India Ministry of Health in reality facilitate the SMA children with the treatment time is running out #Risdiplam #spinraza #zolgensma Cure SMA Foundation of India 🇮🇳

#Saindhav Review #Movie #venky75

Super Hit movie 🎥

Thanks for making a movie on Spinal Muscular Atrophy
#SMA #SpinalMuscularAtrophy
curesmaindia.org

You are brilliant Sailesh Kolanu Director #Saindhav Movie

Venkatesh Daggubati 🎥 at his best in #Saindhav

It's a gutsy movie

V’re extremely gr8ful 2 Sailesh Kolanu, Venkat Boyanapalli, Venkatesh Daggubati, Nawazuddin Siddiqui, Arya, Shraddha Srinath 4 highlighting d challenges of #SMA community in d movie #Saindhav 🙏. #SMA is a rare genetic disorder wid v.expensive drugs beyond d reach of any #SMA patient/parents.

We’re excited to announce that Scholar Rock will be presenting at #JPM24 on Tuesday, January 9th. For more information and a link to the live webcast, please visit our website: bit.ly/3RPyMgP #JPM2024

Our partners at Genentech recently provided an SMA Community Letter regarding Evrysdi® (risdiplam) and their clinical development program.

You can read the full letter here: curesma.org/genentech-comm…

On this #InternationaldayofPwD our #SMArtWarriors on ♿demand the society 2 look beyond what they see n accept the warriors as people n not liabilities! Narendra Modi Ministry of Health Ministry of WCD Ministry of Education Ministry of Social Justice & Empowerment, GOI Roche Novartis NovartisGene Biogen Scholar Rock Biohaven

One of the standout aspect of REDRESS 2023 was the narratives from PAGs- from tales of resilience to stories of hope. It underscored the importance of concerted efforts to advance our understanding and treatment of rare genetic dis Indian Prader-Willi Syndrome Association Cure SMA Foundation of India 🇮🇳 Tata Institute for Genetics and Society, India #Rettsyndrome

CureSMAIndia wishes a happy, healthy and prosperous Diwali to everyone 🎉🎊🎉💐💐⭐🌟🪔🪔🪔🪔🪔🪅🌸🪷🌺🌼💮🙏

To our #SMACommunity that celebrates Diwali, may your festival of light celebrations be fun, safe, and spiritual. #HappyDiwali